Personal reflections / impact of Young Onset Parkinson's in life of a late-40's musician,husband,father and teacher. Metaphysical implications of disease, musings on life, music, poetry ...

Saturday, September 15, 2007

On Diagnosis & PD




s t a r k d i a g n o s i s :(

"in 10 years you'll be hit by a truck"

have a nice day ! :)

Keeping it all in perspective is important, no doubt. I enjoyed at least 45 years of excellent health - you don't have to look far to see small children wrestle with serious disease or injury, young veterans of unnecessary wars broken, shattered or dead leaving families in the wake - so the element of tragedy is relative. Still, as enlightened as we like to pretend to be most of us still spend most of the time living as if we're the center of the universe. So, no matter what, you still feel it as a mule-kick to the gut to be diagnosed with a chronic and progressing disease process .... slow brain-death, while you still have lots of big plans for your grey matter is not for the faint-hearted.

Biggest difficulty with something like in PD dx is its nasty and insistent trajectory - have a stroke, and the doc is likely to consider you at your lowest point and work with you to regain functionality. With PD, essentially, you're at your best now and on your way towards inevitable loss of function, motor control and then some.....while it doesn't officially kill you, it sets the body up for death. Short of any real breakthrough therapies - and there may be some on the horizon -- at best treatment offers a very dubious and tentative promise to slow progression and alleviate some of the symptoms -- often only to create new and more devastating ones. Hard to get happy after being hit with that :(

So Figuring out how to carve out a a place / mentally / coping not to be completely subsumed by the negative has taken on added importance for me- the present, while more challenging, for me is more good than not - the challenge is to stay in the moment - and not to time-travel to a totally f***** future and bring back a great big heaping slop-bucket of tsurris (yiddish-'troubles) to annoint yourself, friends and family in the present. Not so easy for the non-zen masters amongst us - and even if you manage somehow not to do this, good chance your spouse, helpful doctor or concerned friend will inadvertently find a way to do it for you.

My challenge is to live positively in the present......

I will now invoke the ever-handy transcendental Yiddish

(into the full lotus position.....deep healing breath in and......

'oyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyy'







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