Personal reflections / impact of Young Onset Parkinson's in life of a late-40's musician,husband,father and teacher. Metaphysical implications of disease, musings on life, music, poetry ...

Sunday, July 13, 2008

Haiku for Waterbugs


Wise old Waterbug!
Cowers from hot yellow river
Of first morning piss...





Authors note: a true haiku, a transient relationship captured in literary amber....and for the
Stalevo users among you, you know from bright yellow piss, though you shouldn't ought to know from....
anyway, was captivated by the mini-drama played out in the rim of the toilet between my 6 legged friend and his artful dodging of a toxic niagra falls.....

Tuesday, June 24, 2008

The Secret Life of Modem Mitty...the Applesause Files


“Come with me, sit” said the lithe young woman as she guided me into the small sunlit private room.

Smiling wryly, she sat directly in front of me and encouraged me to relax and prepare for what was to come. “Now look at me…I want to really see your face” Our eyes lock as the sunlit grey perfectly shaped orbs of her pupils peered deeply into my tired brown peepers. “Good, yes, that's very good, now – here’s where it can get a little strange, ready?”


“Ready” I say, still tense and apprehensive but calmed some by her warm hand pressed on my knee.

“Okay – now do just what I tell you – open your mouth”

I obey and present the impressive collection of porcelain crowns that helped my old friend the dentist put his third child through private college without a second mortgage.

“Good...very good....… now, watch me.” My heart races as she leans forward and extends her tongue towards me and slowly licks the perimeter of her full well shaped mouth…..”Now you…let me see you use your tongue”

To the inner soundtrack of Gene Krupa hopped up on goofballs going ape on jungle toms I extend my tongue towards her and, with great sensuality circle the perimeter of my mustachioed pie-hole. I know she can feel my hotness...

“Mmmhhh…yes, very good” “Ok, now I will touch you, ok? I will touch your cheek”

A her delicate hand comes close to my face I detect the faint smell of almonds and insecticide – Prince Matchibelly ‘or a good generic I posit…

“Now, you can feel my finger on your cheek, yes? Good then, now use your tongue and press hard against it....yes, do it now, hard!”



With a manly grunt I thrust my tongue hard to starboard, and despite the insistent pressure of her manicured finger manage to hold my own. As she retracts her hand, clearly impressed by my masterful command of Tounge Fu, her white overcoat pulls back to reveal the outline of a young, tight yet ample bosom…..

“Hmmmm……ok….very good then…..now this part can get a little "freaky" for some….we’re going to use food…”

Images of whipped cream body sculpture, immoral acts of epic debauchery using cucumbers and organic arugala in ways never imagined by nature, topped off, naturally, by a fine Cuban cigar dance shamelessly through my mind when my wild reverie is shattered by the utterance of a single word…

“Crackers!”

Ouch…..no erotic potential I can see in them…lets get back to the whipped cream….

“Crackers!...... let me see what happens when you eat one…go ahead”

My fantasie irreparably broken, I return to earth and begin to munch on the dry hardtack as the swallowing specialist with almond eyes and ample bosom stares intently at my throat and makes notes as I struggle to get my Parkinson’s addled throat musculature to move the masticated cracker down the gullet.
This is not how the fantasy was to end…

And in reality, this is not the end, but rather it seems to me the beginning of another phase, where I who maintained an inner self image of an immortal and timeless 25 year old must really begin to reconcile with the truth that the hot medical babe featured in earlier really has z-e-r-o interest in my world-class studliness, but rather sees me as an early geriatric case, an object for study, assessment and statistic, as fodder for the medical file.

So, after noticing a definite decline in swallowing ability I find myself the object of a swallowing study – to be followed in a week or so with a real-time imaging study where you get to drink fou-fou fluorescent and slightly radioactive Mai Tai's while wearing an offwhite hospital gown last worn by who-knows-who who,as everyone knows, has an awful problem with their who-knows-what.

So, knocked down to size, I manage to wrestle the cracker into submission with the help of a few gulps of water….the secret, she says, not to succumb to the potential pneumonias or choking episodes that Parkinson’s can enable, is to chew r-e-a-l-l-y carefully and always have something handy to help slog a stuck morsel down your unresponsive gullet….like applesause, or babyfood.

So I finish the appointment, listen to the minilecture on mindful eating and schedule the next event. On the way out, she thrusts a phamplet with the obligatory smiling grey-haired couple (“Swallowing and You”) into my hands….and, checking to first see that no-ones looking, she says ‘wait…something special for you…take it!’ (ah, so she is hot for me) – and before I can thank her or find the words to say on parting she is gone, leaving only the persistent fog of her perfume to remind me that she was even ever her.

Out in the sunlight, by my newly ticketed car I open the brown paper bag with excitedly and with great anticipation…….a three pack, Motts Individual Servings, Easy Chew Applesause with tear away lids.

Sunday, May 25, 2008

"Smile when you say that" :( A Coffee Saga......)



SHIT!
Roll out of bed late last Thursday .... well, 'roll' is too slick of a word here....more like 'struggle' to work two numb arms with radiating pain in the left shoulder (is it the PD? spinal stenosis? or just a likely torn rotator cuff?) ......as the Stones chestnut 'what a drag it is....getting old" plays on a repeating loop in my fuzzy head. Coffee...

Rushing to get organized I whack my toe but good into a 25 pound freeweight.....more pain, but not enough to do the trick... still not awake.....need coffee.....need coffee.....

Loop through the kitchen on a mad dash to the door and .....SHIT!SHIT!.....out of coffee!!! Ok, it's gonna be ok....will stop on the way to work for a good cup, something strong enough to defend itself....

Make it over to my Mitsubishi, the one with the skin condition ..... notice the air in one tire is low...no time....key in trunk and.....SHIT! SHIT!SHIT!..... the trunk doesn't open...another 'freakin repair ahead...

Cut off by a methed-out tow truck on a short but perilous drive to the local coffee spot. At least its a non-Starbucks place where they don't comment on the cleverness of your order in faux British accent ( "As, yes a fair-trade double whipped moca yaya deep fried unleaded moccafreakin'chinno in a environmentally friendly recyclable tall cup....e-x-c-e-l-l-e-n-t choice, sir!)

Definitely not in the mood for that.

Just coffee....Java, java, java its very near now.....things 'gonna get better......as my wheels scrapes the curb I know I've made it - slam the door shut, noting the weak thud as my last plastic hubcap falls to the pavement.....make it quick 17 steps into the shop....
hmmmm, maybe I'll order a nice piece of rugalah while I'm here....its gonna get better

I was in no way prepared for what happened next:

'Coffee' I mutter

'Sorry, sir...no coffee for you ' says she.

My blank but clearly pre-murderous look from me prompts her to elaborate...

'Ok....I can serve you....but only if you smile!!!' she beams.

'Just the coffee, please' I say.

'No.....I'm serious sir!.....no smile, no coffee!'

Now while I'm not a depresive, truth be know I'm just not a smily type --- especially ear-lie in the morning on demand.....still Modem's a good sport, and I tell my dopamine and caffene starved brain to wire a message to my hairy cheeks (...not those ones! the face, the face!...) to mobilize and pull skywards.....stand there for about 15 seconds in the effort .....nope, can't get it up...(hey! watch it! not that! the cheeks! the hairy cheeks! hey! watch it not those...)

My hands slam down on the counter in....
"JUST GIMME THE DAGNABBED COFFEE!!!!"

I note the calculating look on the pale young face of the counter girl as she wisely steps back to the hot urn of bubblin' joe and pours a measured cup , all the while keeping one eye pegged on the crazy man seething at the register. As she places it calmly on the counter and now looks sykward , raising her arms akimbo and launches into a sermon for the witnesses in heaven " very well sir....it is your life and if you really want to spend it bereft of the joy that a smile can bring I suppose that there really is nothing anyone can really do to make you ..."

..... I tune her out as a spiral column of caffeinated bliss wafts towards my waiting nostrils. I venture a sip, and the haze starts to clear, ahh to be human again, human again....her voice fades back up .....'just here to help and a smile helps all of us ....you really should smile sir" she says with a smile.

I take another sip staring contentently past her towards the pastry case.
Hmmmmm, maybe I will have that rugalah after all.....

"Rugalah" I say blankly...

"Of course, sir ...but only if you smile!"

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Postscript:

Made it out with only my coffee....tire now fully flat...SHITSHITSHITSHITSHIT!..late for work and spilled all the 'freaking coffee fixing the tire.......telling the story later in the day I found I couldn't help but .... smile.

Bastard!.....she won......

go figure....

:)



Thursday, May 1, 2008

What 500 Channel Cable can Teach Us 'bout PD


Thanks to 500 channel cable I recently caught a few late night 'Kojak' episodes - 'still have more hair than that grizzled SOB but I actually used to drive the same Kojak car - a monkey-shit brown Buick Century V8 around the Bronx back in the early '80s.

So, they get a bad guy, but they ain't got the evidence and next thing you know they've got him hanging out a 12th story window held only by the greasy hands of a coupla'thugs - you know how these shows go - and either they drop him (rarely) or pull the broken and repentant bastard
back in and get whatever info they came for...then they wack him ......

At first, the diagnosis of PD is - if you'll permit a wide metaphor - much like being thrust out a window held only by an ankle - your entire perception, your innerscript of how your life would play out is scrambled and spinning -- but then

then...its different.

No one pulls you back in. No one drops you. Nothing happens....yet you're still looking decidedly at the pavement as if the goons who got you into this decided to go for lunch and cuffed your inverted feet to a pipe - and then forgot to ever return after 3 boilermakers too many....

I can accept complete change
I can deal with a brush with peril.
I don't know how to deal with this 'dangling'......and this is the crux of the existential challenge by the longterm progressive degenerative reality of P.D.

Part of me secretly envys the quick exit enjoyed by some. Take Omar, from the 'Wire' shot in the back of the head by young thug...never saw it coming...
As in all things, the anticipation of the thing itself is the most difficult to bear - all of us come and go....'suppose we all get a different view of the process depending upon our karmic need, tikkun, luck of the draw?
....go figure.... :)

Thursday, April 10, 2008

Macintosh Assasin....


Tasty Assasin

apple hides fatal intent

Now that swallowing has flown

Dang-neared choked on a bite of apple - out of nowhere, just drivin' my monkey-shit brown
Mitsubishi Galant de-lux through the late afternoon haze en-route to pickup my 6 year old
terrorist/daughter when - shazAMMM! 'Freakin bit of apple gets caught in a place at the back of my throat where, till that moment, I never even knew had a place! Nothing was obstructed in my breathing, thankfully, but try as I might, hacking aways like an allycat trying dislodge a wad of steel wool from its feline gullet couldn't get the offending piece of fruit to budge.

This went on for several hours before resolving, and caused me no small amount of stress....sort of like hiccuping uncorrected, or a hangnail but in your throat. More disturbing is what this relatively minor even could presage - when your automatic processes are no longer dependably automatic all bets are off. And even as a driver I 'sucked driving a manual.....

So, I now eye my every meal, each minor snack, with a new sense of respect and trepidation as
my eyes have been opened to see that within that rosy come-hither sheen of an organic Macintosh may lie my ticket to the next world, on, that an innocent-seeming bite of steak may come from a Holy Cow on assignment from the holy one, blessed be he, to be a bovine messenger of doom - no matter how you slice it, the future's just not what it used to be around here.

Wednesday, March 5, 2008

Stupid Brain Tricks:


Hmmmm.....maybe the Flushmeister 2000 is closer to my immediate present than I'd like to think. Experienced a new disturbing symptom....smelling things that aren't there.

Getting ready for bed, checking email, was suddenly aware of a series of distinct, pungent and unpleasant odors --- completely un-namable, and not eminating from anything physical (including me.... I checked!)......came and went quickly, 4 or 5 times....not one odor, but a series of them / I found the experience very disturbing...

PD is known to interfere with your olfactory sense....early warning sign can be obliviousness to odors that everyone notices but you. But this....seems to be an internally generated sensation....a hallucination of the nose....misfiring neurons up to shenanigans....

Hallucinations....definately not good :( Is it only a matter of time till visual ones emerge ....'expect any moment Jessica Rabbit to emerge and assume a come-hither pose.....why....well, there she is!...oh, just kidding (....or am I?)

Anyway, this was disturbing...and made it that much harder to catch some shuteye, what with the gimpy arm, tremors, hard swallowing and normal end-of-the-days stresses....
go figure,
Modemdavid