Personal reflections / impact of Young Onset Parkinson's in life of a late-40's musician,husband,father and teacher. Metaphysical implications of disease, musings on life, music, poetry ...

Showing posts with label Diagnosis. Show all posts
Showing posts with label Diagnosis. Show all posts

Saturday, November 14, 2009

HOPELESS ROMANTIC


Entry from the “Modern Translation Guide To Singles Pages Language”

HOPELESS ROMANTIC – has both herpes and aids.

No, no – its not that for me, and, no, ModemDavid remains a faithful married guy, not out there amongst the mingling singles who stare blankly from Ray Bans, thin rays of mingled hope & desire eminating from tired eyes foggy with cheap wine and cheese breath, still seeking that first miraculous locking of eyes with‘the one’ who at any moment may sashay through the doorway if I can only continue to look cool and detatched for maybe one drink more (yeah…right) And, no thank you, I have not gotten any social diseases, unless that mildly inflamed hickey I got from Holly Weiner at 17 counts.

Yet how now at the relatively not ancient age of 50 do I euphemistically describe myself as anthing better, more elevated than simply the cumulative sum of my diseases? Another round of medical visits, more probing, imaging studies (endoscopy, to be precise – which as Los Angeles is a union town involves lowering not only a camera but, apparently, a 3 man IATSE film crew down your neck – or so it felt in recovery) – all of this to reveal the happy arrival of a brand new baby diagnosis – little Moderate to Severe Reflux Disease to add to the list that have truly made 50 the new 70.

So whats on my list now:

Idiopathic Parkinsons

Peridontal Disease,

Myopia

Frozen Sholder,\

Mild to Moderate Spinal Stenosis

Chronic Inflammation of Juvinile Hickey Syndrome ( CIJHS)

I’m one fucked up dude, dude…….and yet

If I am not my name, what am I? If the essential ‘I’ remains more than the sum of my diagnosis, than how do I operate, how do I access the premordial ‘ I’ that animates me from the motionless steady state deeper reality in which the slow but insistant ravages of my multiplicity of disease processes are neutered, rendered harmless, baying perhaps like wolves or hyenas locked safely outside, but firmly enjoined to back off, not interfere or do anthing more than minamaly disrupt the trajectory of my days across the span of a lifetime. Answer me this, o wise one, and I will gladly buy you a beer.

So, like the ‘hopeless romatic’ I still seek retain a link to something optomistic, planning and hopeful looking across the Great Plains of my 50s and beyond hoping to lock eyes with a future that holds something more bearable, duralble and fulfilling than the cold and clear trajectory of multiple diagnosis.

Go figure,

Modemdavid

Sunday, September 16, 2007

Social Implications.....Telling


Who to, how to tell...

Endings shrouded in twilight

stark diagnosis

Saturday, September 15, 2007

On Diagnosis & PD




s t a r k d i a g n o s i s :(

"in 10 years you'll be hit by a truck"

have a nice day ! :)

Keeping it all in perspective is important, no doubt. I enjoyed at least 45 years of excellent health - you don't have to look far to see small children wrestle with serious disease or injury, young veterans of unnecessary wars broken, shattered or dead leaving families in the wake - so the element of tragedy is relative. Still, as enlightened as we like to pretend to be most of us still spend most of the time living as if we're the center of the universe. So, no matter what, you still feel it as a mule-kick to the gut to be diagnosed with a chronic and progressing disease process .... slow brain-death, while you still have lots of big plans for your grey matter is not for the faint-hearted.

Biggest difficulty with something like in PD dx is its nasty and insistent trajectory - have a stroke, and the doc is likely to consider you at your lowest point and work with you to regain functionality. With PD, essentially, you're at your best now and on your way towards inevitable loss of function, motor control and then some.....while it doesn't officially kill you, it sets the body up for death. Short of any real breakthrough therapies - and there may be some on the horizon -- at best treatment offers a very dubious and tentative promise to slow progression and alleviate some of the symptoms -- often only to create new and more devastating ones. Hard to get happy after being hit with that :(

So Figuring out how to carve out a a place / mentally / coping not to be completely subsumed by the negative has taken on added importance for me- the present, while more challenging, for me is more good than not - the challenge is to stay in the moment - and not to time-travel to a totally f***** future and bring back a great big heaping slop-bucket of tsurris (yiddish-'troubles) to annoint yourself, friends and family in the present. Not so easy for the non-zen masters amongst us - and even if you manage somehow not to do this, good chance your spouse, helpful doctor or concerned friend will inadvertently find a way to do it for you.

My challenge is to live positively in the present......

I will now invoke the ever-handy transcendental Yiddish

(into the full lotus position.....deep healing breath in and......

'oyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyy'